This page will give some medical detail, history etc., as often others with chronic pain like to know what has worked (or not) for someone in the same condition as theirs, or like to have an overview of the condition/situation of their fellow chronic pain (CP) person.
Here are the bare bone facts,chronologies of my 22+ year life with constant pain:
- May, 1984, injured spine at work, rotated lumbar area and caused damage around L3-L5, and Left leg sciatica.
- July 1984, after all sorts of PT, meds etc etc, WITHOUT GETTING A 2nd OPINION (dumbest mistake of my life, for which I’m still paying, and always will, but, it’s on me…), had spinal fusion from S1->L4-5. In those days they cut across the hip and used hip bone to build the fusion graft. Post Op was worse than hell (details some other time)
- Later July, 1984, infection at site of fusion(graft of bone fragments taken from left hip) & severe bladder infection, catheter etc. fever up to 105 a few times.
- Feet felt ‘cold’ immediately after surgery (this progessively worsened, details on this later).
- Left leg Sciatica was mostly gone, but had alot of pain and burning along both incisions (this became permanent, to this day, for reasons unknown by conventional MD’s).
- August 1984, after 3 weeks flat on a Bradford frame in the hospital, and pitiful discharge advice (ie, “don’t move or you’ll break the fusion”!!), went home in a brace for a 3 month ‘recovery’.
- August 1984, began convalescence at home for 3-4 months, then went back to work, at first half time, then full time in 2 weeks (thanks alot to my employer for their compassion).
- August 1984-Sept 1986 — constant pain and increasing cold in feet; was put on talwin NX for pain, as well as a number of things for depression. The Talwin NX I learned later has “Naxalone” in it, something which is an antagonist for opiates, which means that it messed with my natural endorphin and pain-fighting neurotransmitter production. By Sept. ‘86 was unable to sleep more than 40 minutes at a time and was still working, but poorly.
- Sept.1986: fired the orthopedic surgeon and went to local orthopedic surgery (and pain) expert. He took one look at me and admitted me then & there.
- Sept-Nov. 1986: underwent cross-disciplinary evaluations and went also to Temple U. Pain Center, started on vigorous Physical Therapy and walking regimen.
- Oct 1986, had a ‘miraculous’ break in the pain via a local chiropractor who uses microcurrent stimulation using acupuncture meridians and points. That day slept 8 hours, and then 14hours.
- Same day: Oct 1986, threw out all the pills and didn’t even take Tylenol (first 4 days were hell).
- Began PT regimen, special exercises for lower back & stomach. Made a goal for myself to return to racquetball and basketball in six months.
- In 4 months played my first racquet ball (albeit not as vigorously as before, but I was out there).
- In 6 months played basket ball, full court.
- January 1987, Returned to full function (and good graces of employer) at work (I was a clinical administrator, director of a large children’s treatment facility). Pain was still there, and the neuropathy continued to worsen — BUT, I had new tools which enabled me to live with it. The same pain which kept me bedridden for 3 months I was able to lead a mostly normal life, all because of theĆ holistic tools I had evolved/learned for myself.
- Kept to the following regimen from Oct 86 until today –
1. Eat well, in moderation, avoid junk food, salt and stimulants; easy on the coffee, salt or alcohol — or I pay big time.
2. Meditate or do progressive relaxation daily, sometimes more often (after a few years I could do the progressive relaxation on the fly if I felt myself tensing up)
3. Use my own microcurrent stimulator,( frequency is below 1 hz.’ regular TENS unit does NOT help, actually makes pain worse); Use the stimulator only when pain is worse than usual (this does not work on the neuropathy.)=
4. Avoid negative people and negative discussions.
5. Be as physically active as I can.( In 1995 I took up ballroom dancing, then salsa; continue these to this day, but have to pace myself; more on this dance aspect in the blog itself at some point).
6. Try to focus on the needs of others.
7. Try to keep my mind on things which interest me.
8. When it’s just too bad, I cacoon (lay on the couch and watch mindless TV, or a bunch of movies).
9.Use Tryptophan or 5-HTP nightly ( a precursor to the natural tryptophan the body produces when getting sleepy.
10. Try to love my wife and show it by doing the littlethings which please her.
11. Listen to music daily.
12. Read what interests me.
13. Seek out laughter. - Summer of 1995: Neuropathy has worsened so pain and burning in feet has moved up to almost the hip area. Walking and standing are very painful (in the feet and in the lower back if prolonged). 1996? started taking Vioxx. (argh)
- Sometime in 2003 (?) Stopped the Vioxx whenever the warning came out., Ortho & pain MD put me on Tramadol, 50mg 1 every 4hr PRN. By 2006 upped to 2 tabs every 4hrs, no more than 8 a day. Usually 6 a day, 8 when weather is cold.
- Depression has been constant, usually dependent on how bad a ‘pain day’ it’s been; depression is worse at end of day. Avoiding anti-depressants because I don’t like the side-effects.(sexual). If the darkness continues to get worse,I may try Welbutrin.OK, that’s the skeleton of my Diagnosis, Med.History and Use of Meds & Coping Tools. The blog will be used to talk all this in more detail, but with a focus on the inner processes at work during events, what I’ve learned, and what advice I can offer others who find themselves in similar straits.Even if no one shows up here, still I find it cathartic to write this for the ‘unseen listener’. It feels good, and, the act of writing forces me to focus better, to articulate things which maybe I’ve been suppressing (repressing) over time. If dialogues do ensue here, and I’m able to share what has worked for me, that would be a nice bonus.
10 responses so far ↓
Andrea RN // March 2, 2007 at 5:40 pm |
Thank you for taking the time to give some of your hx. I was lurking on the Heal board and saw your link.
I am a RN on disability who had cervical neck injury in 92…on the job…two surgeries in 93.It has been a long haul to say the least.
God bless to you and yours, Andrea in Minnesota
Obtusely Oblique // March 2, 2007 at 8:50 pm |
Thanks for visiting and for writing. I hear those cervical neck surgeries are a bear. I recall my roommate during my 3 weeks post-op (on the old Bradford frames, remember those?). He had been in an accident and had his neck and jaw reconstructed. Man did that boy suffer (He was 19).
Hope that your condition is not getting worse, or that you’ve found ways to cope. Funny that I found the healingwell.com forum a month or so after I decided to do the blog (I had been getting very depressed, self-absorbed and thought the writing would help keep my mind off myself. When I dound ‘healing’ it was like a gift from God…the other pain forums I had seen in the past were mostly just negative vibes, ‘my pain is worse than yours’, so I never stayed. This one, as you know, is a totally different place; great moderators and a bunch of caring CP’ers being there for fellow sufferers. It’s been a big help to me so far. I hope you find it useful to add your 2 cents too — the perspective of someone in the medical field(but from the patients perspective) can enrich the discussion I think.
How did you hurt your neck? At work? I did mine dealing with an acting out psychotic teen, a freakish injury, as I was trained and actually trained others in what they call ‘passive restraint’, legal in open settings like the children’s tx center I worked at (Clinical Director). I think that those of us who come from ‘helping fields’ have the potential to help others…it’s sort of genetic on our part perhaps ? ;} . (but then, sometimes we make the worst patients, so they say…???? )
tnx again for writing.
OO
Andrea RN // March 3, 2007 at 9:00 am |
OO
A bright sunshiney day in MN…the snow has finally stopped.
First off before I forget I want to mention some important discoveries I have made recently…some finally coming to light on the news but touched very briefly. I have links I will add to support what I say.
Almost all of my nursing career was in ICU’s of different kinds. Mostly as charge nurse. A lot of heavy lifting so I kept myself trim and fit. Never even had a backache….my injury occured also with a young boy. He was confused after being very ill……his o2 sat monitor started going crazy….his trach needed suctioning immediately or he was going to code. He was fighting with me as I tried to hold him down with one hand and suction with the other. As I did so I felt something in my neck………there it went.
The concern I would like you to know about is just how much tylenol/NSAID’s are causing hypertension. My b/p has always been on the low side and even in severe pain would only go moderately high (or drop as it sometimes does). After my surgeries I would take maximum prescription of Ibuprophen for a year or two…then give up….then put on Vioxx…that stopped. Back on Ibuprophen…..last summer it was the usual…..neck pain, depressed about it….then I began to feel very anxious….decided to take my b/p. It was 168/90….okay…will recheck. A few hours later it was 180/92…..I put in a call to clinic on call Dr. since it was after hours…..a few minutes later I became dizzy, nasuated, sweating……called 911. Off to ER and then took b/p med daily which kept me normal.
hmmmm….since I was not taking other meds except continuing with the Ibuprophen and prylosec (to prevent ulcer from it) oh….a prn order every 3 or 4 months for Percocet when I would reach the nut stage…..I decided to do alot of web search on Ibuprophen. It is now found that it and tylenol are causing 48% of those who use even a few times a month to become hypertensive.
Discussed this with Doc on Jan 15 and three days later was completly off the Ibuprophen. One week later my b/p was down to 104/52 so I stopped the b/p med and have not taken since. My b/p stays about 115/70 now.
I made some major decisions. I am 63 years old and have been miserable most of the time since I was injured at age 49…..I told Doc I am tired of it….(also did web search on how many with true pain become addicts….very few) So I am now taking three Vicodins (not going to give me hypertension or destroy my liver if taken as orderded) dose is 7.5/325 taken three times per day (325 is amount of tylenol)
Yes, the amount of tylenol does concern me some but if it was pure Vicodin it would become a Class II drug and need a handwritten prescription new everymonth (and I plan on a slow lazy trip in my motorhome now that I am feeling better) (with my 110lb Rottweiler, Rommel
From my research I believe that Tramadol is much less pain effective, loses its potency quickly, and has been proven to be much more addictive than opiods.
Remember……being dependent upon a drug is not the same as being addicted to it!!!!!! People are dependent on b/p and diabetic drugs not addicted to them.
If you decide to go on Vicodin have your doctor do a computor check while you can see to find the one that has the least amount of tylenol.
I will post this and then come back and post the links I referred to. Have a wonderful day, Andrea
Obtusely Oblique // March 3, 2007 at 4:50 pm |
Andrea: Thanks so much for your story, and especially the details of your experience w/vicodin.
I did hear not that long ago that Ibuprofen (NSAIDS) AND Tylenol can be bad for a couple reasons: 1, bp and the other long-term liver side-effects.
In another instance of synchronicity (re: your input on Tramadaol)I recently decided that I have to have a consult with the pain Doc again to reevaluate my present use of tramadol & tylenol. I’m with the VA and did see their specialist last year, but she wanted to go with Topiramate (for the neuropathy). Problem is, I have the burning sharp pain into the incision site (mostly between L3-L5) and along the iliac, but of late the neuropathy is getting worse and worse, rising up to where it’s about mid-way up my thighs now.
Topiramate has alot of side-effects, and as I am still working (at home but still have to put in full days to pay the bills) found I could not use Neurontin, and Topiramate seems similar…Anyway, you just reminded me of my decision, spurring me to make the call. I have to pay for non-VA specialists and so cant’ go every time I get a whim. Anyway….will follow your advice and yes, do put the links here. I can also add them to the blogroll/links section of the blog. Appreciate your input very much.
OO
Andrea RN // March 3, 2007 at 7:51 pm |
I posted links this morning and then lost the post. Will do them seperately now…
http://www.stats.org/stories/new_risks_tylenol_aug18_05.htm
ps I watched my 54 year old sister die of multiple organ failure in August at Mayo clinic in Rochester, MN. She had been on long term use of both tylenol and NSAID’s following extensive back surgery after a snowmobile accident. She did not take narcotics. She became ill and died several days later.
Yes, seems as tho I need a nudge too once in awhile …otherwise I get bogged down in pain and indecision.
Andrea
Andrea RN // March 3, 2007 at 7:55 pm |
http://www.sciencedaily.com/releases/2005/05/050520173321.htm
Andrea RN // March 3, 2007 at 8:05 pm |
http://healthlink.mcw.edu/article/1031002299.html
I think you need to push the VA in order to have your needs met!!
My husband was a 25 year Marine Corp Vet so had good insurance. He died in 95 from Agent Orange complications.
My hospital’s insurance carrier pays for all bills on my neck. I do not have other health problems….now that b/p issue is resolved.
I don’t know much about drugs for neuropathy. I had part of the Posterior ligament of my neck removed so my arms are very weak. Not ever a fix there. My adult son has an apartment on the lower level of my house so he carries groceries etc etc. It is just the last three or so years that I have noticed my legs from knees down seem very heavy and uncoordinated. Stairs are hard for me.
Yes, the vicodin has improved the quality of my life. I still have bad spells but now I have good days if careful. Andrea
OO // March 4, 2007 at 2:42 pm |
Andrea: Thanks SO much for the articles/info. I’ll take them with me when I see my pain Doc.
And so sorry to hear of your loss of sister — and a cautionary tale if ever there was one.54 us is so young– and it wasn’t that long ago…offering my condolences :{ .
PS: I was using moderation for comments but have changed that. Now comments will go up right away (which is what happened this morning when I was not online).
OO
Obtusely Oblique // June 7, 2007 at 1:48 pm |
Not sure if you’re around Andrea, but I took your advice and started on Celexa…1 month now and it’s helping. TNX.
robert // December 24, 2008 at 10:03 pm |
Dec.24 2008 10:00PM first time on computer since my last cervical fusion last week 12/18/08 site appears inactive, since I have not participated in any forums before I will shout out and let the future unfold as a participant.I am a 53 year old disabled/retired irorworker. my fist surgery was a cervical in 1983, rampant arthritis and working at a harsh occupation for 20 years resulted in well over a dozen major surgeries. I have recently learned about microcurrent therapy as a healing alternative to a TENS UNIT Anyone have any advice on where to purchase a reliable microcurrent machine, especially where ins. would help out